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Adrenomyeloneuropathy Community on RareShare
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ALD LIFE
ALD LIFE aims to help all affected by or interested
in adrenoleukodystrophy and adrenomyeloneuropathy,
whether personally or medically. We will try and
help you to become Aware, Learn and Discuss the
many implications of this devastating disorder.
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Adrenoleukodystrophy on Wikipedia
Provides an overview of the disease, symptoms,
and treatment options for patients suffering from
Adrenoleukodystrophy (ALD).
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AMN-Easier
AMN-Easier provides telephone advice, information
and support to adult men and women who have recently
been diagnosed as having Adrenoleukodystrophy
(ALD) or Adrenomyeloneuropathy (AMN).
Tel: 020 7267 6573
Monday - Friday: 9.00am - 10.00pm
Saturday and Sunday: 9.00am - 5.00pm, weekends
FightALD
The mission of FightALD is to educate medical
professionals and the community about the symptoms
of ALD and AMN to hopefully enable people who
are affected get an accurate diagnosis.
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MSN Leukoddystrophy Family Support Group
Looking for a place to discuss ALD or AMN? Visit
the MSN Leukoddystrophy Family Support Group site
to access message boards, documents, upcoming
events, diagnosis stories, and more.
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Olivers Army
Olivers Army is a registered charity in the United
Kingdom that has been formed to raise money for
ALD research. In 2007 the Organization has pledged
£100,000 to the Max Planck Institute in
Germany.
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United Leukodystrophy Foundation, Inc.
The United Leukodystrophy Foundation (ULF), incorporated
in 1982, is a nonprofit, voluntary health organization
dedicated to providing patients and their families
with information about their disease and assistance
in identifying sources of medical care, social
services, and genetic counseling; establishing
a communication network among families; increasing
public awareness and acting as an information
source for health care providers; and promoting
and supporting research into causes, treatments,
and prevention of the leukodystrophies. Leukodystrophies
are a group of genetic nervous system disorders
affecting the myelin sheath, which insulates the
axon through which nerve impulses are conducted.
The ULF is supported solely by donations.
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